Update From Behind The Shield

It’s been a while since my last post: my apologies.  The last few months have been difficult for all of us. Tens of thousands have died and many more have been kept alive only by the brilliance of the doctors, nurses and staff of the NHS. Countless others, who have not been directly affected by…
Read More

FACT – Puppies cause the Coronavirus

At the exact moment the first case of the Coronavirus was contracted in Wuhan, China, a litter of puppies was born in Zhifang, a town just 16.39 miles from the epicentre of the deadly disease. On 31st January 2020, when two Chinese tourists tested positive for Corvid-19 in Rome, in the quartiere Monti, a neighbourhood…
Read More

Coronavirus Special

Anyone who knows me well would probably describe me as having an upbeat, sunny disposition, devoid of cynicism. But, even my sunny-side-of-the-street personality is being tested at the moment. I am not by nature an anxious person which, given my circumstances, is undoubtedly a good thing, but Coronavirus is just beginning to fray my nerves…
Read More

The Great (But Very Slow) Escape

The adult ICU at the Royal Brompton hospital is a kind of ICU on steroids. I was in a room that, I guess, was about twenty feet square. The air in the room is changed regularly and kept at a slightly higher pressure than the air outside the room. I had a highly-trained nurse with…
Read More

Given a Voice

  Back in September, just before Polly and I went on our cruise, I had been visited by the Compass Assistive Technology Service, usually referred to simply as the Compass Team. If you have read my previous posts, and particularly Things are Rigged, you may remember that, in early July 2018, I had lost the…
Read More

Into the Dark (part three)

  My transfer to the Royal Brompton meant that I began to turn, if not a corner, then a long, slow bend in the right direction, albeit with a few trip-hazards along the way. I came to inside a white room, still beset with the, now familiar, combination of hallucination and pain. I lay on…
Read More

Muscular Dystrophy UK is a UK charity
focusing on muscular dystrophy


Meet Stephen

Welcome to Every Breath I Take,
a (mostly) humorous look at the
ups and downs of living with severe
disability at home, with a family, a
24/7 care team and, a large black


Featured Posts



If you like my blog and want to keep
up with the latest posts, please sign-up

Something went wrong. Please check your entries and try again.




Family & Friends








Inspirational Quotes

“Always remember you are braver than you believe,
stronger than you seem, smarter than you think and
twice as beautiful as you’ve ever imagined. ”

Dr. Seuss