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It had been a while since we’d done anything a bit maverick, Polly decided, so she booked me in for a flying lesson. She had stumbled upon a charity called Aerobility boasting that it offered ‘disabled people, without exception, the opportunity to fly an aeroplane’. Right, she thought, we’ll test that to destruction. So, on…

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      In August 2019 my brother Mark died, he was 55. Circumstance kept us apart but we were close in spirit, fate having dealt us a similar hand. When I think of Mark, of his dry wit, his wisdom, his kindness, the man he became, I can’t help but remember our childhood, our…

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I have an extreme, second generation, form of Facioscapulohumeral [FSHD] Muscular Dystrophy with related Chronic Obstructive Pulmonary Disease [COPD], resulting in wheelchair use and 24 hour-a-day ventilation via a tracheotomy. Not mention a hard-earned familiarity with umpteen medical terms. The name Facioscapulohumeral describes the muscle groups usually affected most – ‘facio’ = facial ‘scapulo’ =…

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If you followed my previous blog, How To Be An Inspiration you may have wondered why it tailed off and what happened next. Over the next few posts, I shall endeavour to catch you up with the relevant goings-on over the last five years. But why start a new blog now?Well, firstly I’ve missed blogging.…

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