I have an extreme, second generation, form of Facioscapulohumeral [FSHD] Muscular Dystrophy with related Chronic Obstructive Pulmonary Disease [COPD], resulting in wheelchair use and 24 hour-a-day ventilation via a tracheotomy. Not mention a hard-earned familiarity with umpteen medical terms. The name Facioscapulohumeral describes the muscle groups usually affected most – ‘facio’ = facial ‘scapulo’ =…

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If you followed my previous blog, How To Be An Inspiration you may have wondered why it tailed off and what happened next. Over the next few posts, I shall endeavour to catch you up with the relevant goings-on over the last five years. But why start a new blog now?Well, firstly I’ve missed blogging.…

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