I spent a week in the St Helier hospital ICU where doctors and other staff struggled to stabilise me enough to make a transfer to the Royal Brompton safe. It was, I can state without a hint of hyperbole, the worst week of my life. Despite being heavily sedated, I was in a great…

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In early July 2018, on the day England beat Columbia 4-3 in a World Cup penalty shoot-out, I was admitted into St Helier hospital. Over the previous two days, I had lost the ability to speak and to swallow and to breathe unassisted by the ventilator; a tipping point after months of gradual decline. Eating…

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